1.18.2009

Firsts.

As parents, we celebrate with our children all of their firsts...first tooth, first lost tooth (when it's lost in the traditional way), first time riding a bike, first time using the "potty," first time sleeping in a bed, etc, etc,...

The form of dwarfism that Evan has goes unnoticed to the untrained eye because he is still young. Most people in our social circle know that he has dwarfism because they have known us through the entire process from birth to diagnosis and on.

However, we are in a new ward (church congregation) and not everyone there is familiar with our family. So when, Evan's new church teacher asked Rob if Evan was a dwarf, I was floored! I thought I would be sad, but I wasn't. In fact, I was thrilled!! Maybe because others are finally seeing what we know, rather then just looking at him strangely and wondering. I don't know...

...but we celebrated this first--there was no clapping or cheering, but we celebrate our peace with this challenge and that I didn't run away in tears as this becomes more of a reality. It's all going to be okay.

P.S. For those who don't check out my FB, we did win the Nike shirt!!!! It should be here in a few days and I'll post a pic of Evan in it when we get it.

P.P.S. To our LP friends and family (and any others with input)...We have made it a point to let Evan know that even though he'll have a little body, he's still a big boy. Lately, though, he keeps telling his Dad that he doesn't want to be little that he wants "to be big like my daddy." Rob doesn't get rattled by much, but it makes him sad and we're not quite sure how to handle Evan's wishes. I didn't think saying "Tough Evan, not gonna happen" would be very sensitive, but I don't want to mislead him. He's almost 4--should I just blow it off, or how should I approach it. I need your expertise!!

7 comments to remember:

Mike Mallinson said...

I don't know if you guys are on the Yahoo POLP list at all, but this is a topic that comes up every few months over there! We haven't had a reason to deal with it yet, since Caitlin is only 18 months, but we have been able to explain to Evan (her 5 year old brother) through attending multiple LPA events, introducing him to other LPs, and explaining to him that sister is going to be little like these grownups, and he's actually starting to understand. We'll be doing things in a very similar fashion with Caitlin - we want to make sure she has a "mentor" of sorts in the LPA so that she always has someone to talk to who understands how she may feel. We want her to have as many opportunities as she can to see other LP kids and adults, and to understand that it is perfectly okay to be more like them than like us... If you're not on the POLP list yet, try asking over there - there are quite a few parents on that list who have already been thru that process and can answer better than I can!

Brossettelewis said...

Congrats on your reaction.

Sorry, I have no idea what to say on how to help him.

family said...

All I know is we miss you guys, little Evan and big Ty-guy. Hope you find some good solutions through your LP friends.

Kim said...

Preston I don't think notices his size, or if he does-it does not seem to bother him. I am sure he knows he is smaller at school, he has a step stool and uses it-but he does nto let his height influence him. Although he also likes to be told he is a big boy (and he is just not in height). A girl at the store his age called him a little boy (as I siad say hi to the little girl) no harm no foul right? Preston threw a fit-I'm not little, I'm a big boy!" I assured him that he is a big boy, even though his legs are not so big!
Cannot wait to see Evan in the shirt.

Laura said...

wow i must be busy lately haven't had time to look at blogs lately. you do a great job keeping your blog up-to-date. good luck with evan.

Heather said...

Hiya Andrea,

I just poked around your blog for the first time - I learned more about you today. Keep walking the walk, sister! You're as awesome a mom and wife as you are an artist, I'm gathering.

{hugs}

The Johnson Family 5 said...

I am in LOVE with that picture!! Wow..it looks great!! Any tips on how to re-create?